At Emory’s Integrated Memory Care Clinic (IMCC), we often field questions from family members and caregivers who’ve been doing their own research. While we encourage you to educate yourself, it can be difficult to separate facts from theories and to make sure your resources are reputable. We’ve set out to provide a list of reliable and trustworthy resources. This isn’t intended to be an all-encompassing list, but these are almost always our first recommendations.
Dementia Resources We Trust
Date: Jun 14, 2019
Alzheimer’s Association
The Alzheimer’s Association offers information about Alzheimer’s disease and related dementias, including Lewy Body and Vascular dementias. You’ll find information on everything from legislation related to dementia and Alzheimer’s disease to local resources, such as caregiver training and support groups, programs such as SafeReturn®, and stage-specific information.
National Institute on Aging
The National Institute on Aging (NIA) works to understand the nature of aging and the aging process. The institute’s mission includes supporting and conducting aging-related research and sharing information related to this research with the general public, health care professionals, and research scientists. The site has information on healthy aging, caregiving, and end-of-life planning. You’ll also find information on the latest in aging-related research.
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Alzheimer’s Disease Education and Referral (ADEAR)
1-800-438-4380 (toll-free), adear@nia.nih.gov
The National Institute on Aging’s ADEAR Center offers free information about Alzheimer’s disease and related dementias for families, caregivers and health professionals. Visit the site to find information on such topics as disease basics, causes, symptoms, treatment, caregiving, and research and trials. ADEAR Center staff answers telephone, email and written requests, and makes referrals to local and national resources. You can contact ADEAR for answers to specific questions about Alzheimer’s disease, referrals to local support services and research centers, and information about clinical trials as well as Spanish-language resources and training materials.
Books
The 36 hour day: A Family Guide to Caring for People who have Alzheimer Disease, Related Dementias, and Memory Loss – Nancy L. Mace and Peter V. Rabins – Offers a great deal of useful information, including practical and legal advice, but can feel a little clinical.
Learning to Speak Alzheimer’s: A Groundbreaking Approach for Everyone Dealing with the Disease – Joanne Koenig Coste – Focuses on the emotional well-being of both patients and caregivers.
Creating Moments of Joy Along the Alzheimer’s Journey: A Guide for Families and Caregivers – Jolene Brackey – This best-seller focuses on the idea that while caregivers cannot create perfect days for people with dementia or Alzheimer’s disease, they can create moments of joy that linger on as a positive feeling long after the moment has passed. Includes practical advice along with encouragement and humor.
The Alzheimer’s Action Plan: The Experts’ Guide to the Best Diagnosis and Treatment for Memory Problems – P. Murali Doraiswamy M.D. and Gwyther, Lisa P., M.S.W. – Combines the insights of a physician and social worker and includes information on diagnosis, treatments, and guidance for coping with changes in early and middle stages.
Living Your Best with Early-Stage Alzheimer’s: An Essential Guide – Lisa Snyder – Intended as a working guide to help the person with Alzheimer’s move forward once diagnosed.
What If It’s Not Alzheimer’s?: A Caregiver’s Guide to Dementia – Gary Radin, Lisa Radin, and Murray Grossman – A comprehensive guide to dealing with Frontotemporal Dementia (FTD), one of the largest groups of non-Alzheimer’s dementias.
Coach Broyles’ Playbook for Alzheimer’s Caregivers – Frank Broyles – Written with the hope that others could benefit from his family’s experience caring for his wife, Coach Frank Broyles offers relevant tips and strategies for caring for a loved one with dementia.
Use the link below or call 404-712-6929 to learn more about how the Integrated Memory Care Clinic can help.
Emory Integrated Memory Care Clinic
The Integrated Memory Care Clinic (IMCC) is a nationally recognized patient-centered medical home that provides primary care individualized for someone living with dementia and is designed to replace your current primary care provider. Our goal is to provide the best dementia-sensitive primary care.
Brain health is critical to your quality of life
Emory Brain Health Center
The brain is the center of all your thoughts, behavior and movement. That’s why brain health care at Emory Healthcare is transforming patient-centered care by bringing more than 400 experts subspecialized in every type of brain condition together. From stroke to brain tumors to epilepsy and psychiatric conditions— we can treat all diseases and conditions of the brain.
Our world-renowned center offers patients accurate diagnosis and custom treatment options to deliver lifesaving care. Unlike any other health care system in the country, we combine five brain health specialties: neurology, neurosurgery, psychiatry & behavioral sciences, rehabilitation medicine, and sleep medicine under one roof.
With our creative partnerships between specialties, we're able to quickly diagnose conditions and develop treatment plans that change patients' lives. You can learn more about some of our team’s remarkable work in Your Fantastic Mind, a PBS television series syndicated throughout the United States.
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