From the NFL to ALS: Kerry Goode’s Journey

Before taking the field for a big game, Kerry Goode would give himself a pep talk.

“Stay in the moment,” the former star running back at the University of Alabama would tell himself. “Don’t get ahead of yourself. If things go wrong, don’t go wrong with it.”

Kerry is putting those words to use now as he wages an off-the-field battle against his nervous system.

In 2015, he was diagnosed with amyotrophic lateral sclerosis (ALS). It’s commonly called Lou Gehrig’s disease. There is no cure for the neurodegenerative disease that affects nerve cells in the brain and the spinal cord.

Goode’s symptoms started with breathing issues, chronic sinus infections, weakness, cramps, and weight loss. His wife and full-time caregiver, Tanja, saw a marked change while watching Kerry through the kitchen window.

After a string of doctor’s appointments, Kerry received the heartbreaking diagnosis.

“The nervous system starts to break down. The way it breaks down is by pulling the nerve fibers that wire us together away from the muscles,” Dr. Glass says. “And what happens when the muscles aren’t connected? The same thing happens when the light bulb isn’t connected to the wire anymore. It stops working.”

When the disease begins, symptoms may be mild and include slurred speech, muscle twinges, difficulty swallowing, and muscle cramps. As ALS progresses, muscle weakness will spread to other parts of the body. People may find it difficult to move, swallow, speak, or breathe.

Symptoms and rate of progression vary from person to person, but people diagnosed with ALS generally live about three years.

The diagnosis was devastating for Kerry since he could always rely on his body to perform.

After a standout career at the University of Alabama, Kerry Goode spent 11 years in the NFL, first as a running back, then a strength and conditioning coach.

Eighteen months after his ALS diagnosis, Kerry spent two hours each day dressing himself and required supplemental oxygen throughout the day. A year after that, he used a wheelchair full-time and a BiPAP machine to help him breathe.

“At one point, I could bench over 400 pounds, and I squatted 800 (pounds). Now I can’t even pick up a glass of water,” Kerry says. “It’s hard to imagine being in this position. It’s even harder to be here when I can’t get out of it.”

Pharmaceutical companies and bioengineering firms are working to develop drugs and genetic breakthroughs to understand how and why the disease happens.

For Kerry though, that breakthrough may come too late. He’s drawing on the lessons he learned playing football to carry him through.

“Accept where you are,” he says. “Embrace it. Don’t keep looking back because it’s not coming back.”

Visit Emory ALS Center online for more information on the diagnosis of ALS, treatment options, and patient resources. Click below or call 404-778-7777 for more details.

Emory University and the Emory Brain Health Center have partnered with Georgia Public Broadcasting (GPB) on a television series, “Your Fantastic Mind,” which features compelling stories about brain-related health and wellness.

“Your Fantastic Mind” began airing Season 2 in September 2020 on GPB’s statewide television network. The Emmy-winning news magazine-style show highlights patient stories and reports on cutting-edge science and clinical advances in neurology, neurosurgery, psychiatry, sleep medicine, and rehabilitation medicine.

For a complete listing of Season 2 episode air dates and times, visit emoryhealthcare.org/yfm.

Season 1 of “Your Fantastic Mind” examined topics including sleep apnea, obsessive-compulsive disorder, Alzheimer’s disease, stroke, PTSD, Huntington’s disease, migraines, and video gaming disorder, which has been designated a mental health disorder by the World Health Organization.

Jaye Watson is the show’s host, writer, and executive producer. She is an Emmy- and Edward R. Murrow award-winning veteran Atlanta journalist and video producer for the Emory Brain Health Center.